June
2000
I keep intending to set aside time to write but somehow days go
by and I don't find the time. Is it too painful? I don't know. I
don't think so. When Father's Day was approaching, a friend asked
me how I felt about it. I replied that this day did not hurt or
make me sad, mainly because Father's Day had meant nothing to dad
for the past two, maybe three years. Neither had his birthday on
May 5 or Christmas or any other special day.
I have thought
about grieving and what it was like when my mother died in 1986
and what it's like now. There is very little comparison, at least
at this point. After mum's death - a short but very painful death
as a result of lung cancer - I was in a state of disbelief, shock.
Although I was with her when she died, the reality did not sink
in for months. I think I had denied her pending death because I
could not bear the thought of life without her. I cried for over
10 years.
With dad it
is so different. I have had years to prepare for his death. Because
of my work I have had the opportunity to understand the disease
processes involved - vascular dementia, arthritis, incontinence
and because I was his primary caregiver I made the decisions that
basically dictated how his life would end. I had none of these advantages
with my mother.
I continue
to wonder about my grief process with dad. I have had a few episodes
of gut wrenching crying but not as many as I thought I would suffer.
At times a picture of dad comes into my mind - sitting in his wheelchair
the months before his death - and my heart breaks quietly for a
few moments. I have to think I am handling things better because
of the years of crying I experienced before dad died. It occurs
to me that I feel in a way that dad is still here...over in Lincoln
Place waiting for me to visit. But maybe Doug Manning is right;
maybe I will wake up one night and start to grieve the way I did
for my mother. Maybe not. But I'll take it one day at a time. At
times I see a dark hole looming, because I have lost my second parent,
the only person left who would always love me no matter what.
The minister
at Lincoln Place sent me a book (by Doug Manning) called Don't
Take My Grief Away From Me. The book leads the reader through
the process of saying goodbye - from the funeral to understanding
death, grief, changes and the beginning of a new day. This book
is short as are his others, plainly written but full of compassion
and support. He says that one should plan a memorial as you think
it should be, as a gift of love to the person who has departed.
I did that with dad. He had it in his will that we would have a
regular funeral as we did for my mother and the service would be
in the church near our family home. With the support of the minister
I chose to have a short memorial service in the church dad and I
attended together in the last years of his life, the church in which
he got married. I believe dad would have been very happy with my
decisions. The service and my words were my tribute to him. Many
friends who attended later told me they were so glad they had come;
for them the service was moving in its simplicity and honesty. The
biggest thing I have learned from Doug and his books is that there
is no right or wrong way to grieve. There is no timetable for grieving.
Most importantly we all have the right to grieve and we should not
let anyone take away this right by saying things like: "It's been
long enough; time to get over it and get on with life."
About 3 weeks
after dad died I got a phone call from a friend of my parents. She
was quite upset that she had not been told about dad and so had
missed the memorial; apparently my aged aunt was to have let her
know. I did try to call her several times but there was never any
answer and indeed, I didn't even know if I had the right phone number.
We chatted for a while and I asked about her partner Bill. She told
me Bill's mind was fine (he's 95) but he is living in a retirement
home because he needs a lot of assistance with daily living. It
turns out Bill is in a place very near me that dad and I had looked
at but which dad had turned down saying there wasn't enough closet
space... but he was turning everything down then. Somehow he ended
up in another home but I wonder how things might have been had he
known Bill was there. I asked Margot for Bill's number; we are planning
on meeting at his place to have a visit. I look forward to it.
I think about
the last hours before dad's death; how I sat by his bed and talked
to him, telling him how much I loved him and how I would look after
everything, that it was OK for him to go. In my research for a section
on end-of-life care for my new web site (www.howtocare.com) I read
parts of several issues of the Journal of Palliative Care I had
licked up at the end-of-life conference in Ottawa in April. I was
particularly struck by an editorial in the Winter 1999 issue entitled
At the End of Life: Giving Thanks and Forgiving by
David Roy. He says that the dying need to be given the opportunity
to say thank you and to forgive. In my case my dad was beyond speaking
many months before his death; I never really knew if he lost completely
his ability to understand.
There was a
lot of hurt and anger after my mother's death. I raged at him, something
no-one who met him or me in the last few years of his life would
ever believe. Doug Manning gave me a new definition for depression:
depression is swallowed rage. It was for me. I was in my mind justified
in my anger and wondered if I would ever forgive my father for the
way he treated my mother during her life, something I rarely talk
about. His difficult personality and the increasing dementia did
not make things any easier. But somehow I worked it through and
ended up seeing my father for what I believe he really was: a man
who did the best he could, who loved his family above all else and
who never intended to hurt others.
Mr. Roy says
forgiving does not mean forgetting or pretending that something
never happened. He says: "To forgive is to unknot the strands of
humanity in me that have become all knotted up with rage and hatred.
To forgive is to refuse to carry that rage and hatred forward into
my future and, if one is dying, to forgive at that moment is to
refuse to carry rage against, hatred of, and rejection of another
human being into death. To forgive is one of the highest and most
difficult of all human acts. If I can do that, then I can with solid
hope ask to be forgiven when it is remorse over what I have done
to another that is knotting up the strands of my existence."
When I looked
at dad near the end of his life, I saw a man who suffered physically,
emotionally and psychologically during his last years. I could have
abandoned him as my siblings did but they did not understand the
blessings of forgiveness which I found. There was no point in not
forgiving my father. There was everything to gain in finding the
love and strength I needed to care for him. I consider helping a
loved one leave this life an immense gift. I will be forever thankful
that I was able to sit with my father as he died and support him
with words of love and thanks. I am a better person for having been
given this gift.
I know I am
rambling...sort of how my mind seems these days.
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