How to Care: Support Groups
Things You Should Know

Support group participation

The more actively support group members participate in the group:

  • The higher their levels of satisfaction
  • The greater their coping skills
  • The more positive their attitude toward the problem or issue

Barriers to participation in support groups

  • reluctance to disclose personal problems to strangers
  • perception of joining a group as a sign of weakness
  • fear of becoming overwhelmed by other people's problems
  • lack of information on availability of groups
  • lack of support from family and friends
  • lack of information on how to start a group
  • geographic distance
  • age — older adults are less likely to seek outside help
  • ethno-cultural background
  • mobility restrictions
  • Traditional support groups and self-help groups
    These are usually informal groups of individuals with similar concerns who meet, on a regular basis, to exchange information and provide peer support. The group leader may be a peer or a professional facilitator. The group may be self-organized or part of a larger organization.
  • Telephone networks
    Telephone networks can be particularly effective for people who need one-on-one support but are unable to attend regular support group meetings.
  • Self-help networks
    Self-help networks consist of support groups that have banded together to form a larger organization. This usually provides a strong base for fundraising initiatives and advocacy and lobbying activities. Self-help networks usually have a single focus or cover a specific geographic location.
  • Self-advocacy groups
    Self-advocacy groups focus on educating the public about the group's priority issues and lobbying decision-makers to bring about legislative, policy and program changes and initiatives.
  • Online support and self-help groups
    • Discussion groups on the Internet
      Individuals can post messages and respond to messages on bulletin boards or enter "live" chat rooms.
    • Newsgroups on e-mail
      Individuals can post and respond to messages on bulletin boards.
    • E-mail mailing lists
      Subscribers to a specific e-mail account share ideas, feelings and information.

Successful support groups

  • provide a safe, secure, welcoming environment
  • respect the confidentiality of members' discussions
  • encourage members to be respectful towards each other
  • emphasize emotional support and practical coping skills and strategies
  • encourage active participation and active listening on the part of all members
  • encourage members to give and receive help
  • are open to all members of the public who share a common experience
  • hold meetings on a regular basis, preferably free of charge
  • have an organizational framework
  • are run by and for group members
  • use peer members as facilitators and educators
  • invite professionals to participate as guest speakers and to play a consultative role
  • have strong community links
  • share their collective knowledge about a wide range of resources