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Things You Should Know
Support group participation
The more actively support group members
participate in the group:
- The higher their levels of satisfaction
- The greater their coping skills
- The more positive their attitude toward the problem or issue
Barriers
to participation in support groups
- reluctance to disclose personal problems to strangers
- perception of joining a group as a sign of weakness
- fear of becoming overwhelmed by other people's problems
- lack of information on availability of groups
- lack of support from family and friends
- lack of information on how to start a group
- geographic distance
- age older adults are less likely to seek outside help
- ethno-cultural background
- mobility restrictions
- Traditional support groups and self-help groups
These are usually informal groups of individuals with similar
concerns who meet, on a regular basis, to exchange information
and provide peer support. The group leader may be a peer or a
professional facilitator. The group may be self-organized or part
of a larger organization.
- Telephone networks
Telephone networks can be particularly effective for people who
need one-on-one support but are unable to attend regular support
group meetings.
- Self-help networks
Self-help networks consist of support groups that have banded
together to form a larger organization. This usually provides
a strong base for fundraising initiatives and advocacy and lobbying
activities. Self-help networks usually have a single focus or
cover a specific geographic location.
- Self-advocacy groups
Self-advocacy groups focus on educating the public about the group's
priority issues and lobbying decision-makers to bring about legislative,
policy and program changes and initiatives.
- Online support and self-help groups
- Discussion groups on the Internet
Individuals can post messages and respond to messages on bulletin
boards or enter "live" chat rooms.
- Newsgroups on e-mail
Individuals can post and respond to messages on bulletin boards.
- E-mail
mailing lists
Subscribers to a specific e-mail account share ideas, feelings
and information.
Successful support groups
- provide a safe, secure, welcoming environment
- respect the confidentiality of members' discussions
- encourage members to be respectful towards each other
- emphasize emotional support and practical coping skills and strategies
- encourage active participation and active listening on the part of all members
- encourage members to give and receive help
- are open to all members of the public who share a common experience
- hold meetings on a regular basis, preferably free of charge
- have an organizational framework
- are run by and for group members
- use peer members as facilitators and educators
- invite professionals to participate as guest speakers and to play a consultative role
- have strong community links
- share their collective knowledge about a wide range of resources
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