always believed in sharing my caregiving experiences with
others. In 1996 I began On My Mind
Network, an honest portrait of what it was like to care
for my father Ralph whose last years were spent in long term
care suffering from vascular dementia/probable Alzheimer Disease,
arthritis and incontinence. My father died on Easter Monday,
April 24, 2000 but I continue to talk about my feelings and
experiences as I reflect on my 14 - year caregiving journey.
have shared their comments
about "On My Mind".
Care has given me a new opportunity for self-expression. I
plan to use On My Mind as a place to discuss other things
that I have learned or been thinking about. Issues I believe
are critical for the well-being of both ourselves and those
for whom we care. Issues like dementia and dignity and end-of-life-care.
caring for my father I started to experience what it's like
to be old in our society. I didn't like what I saw. I met
people who talked down to my father, who treated him roughly
or with too little respect. I met professionals who had too
little time or concern for an old man who needed help. I tried
to take him places, which had no wheelchair access, or food
he could eat.
my thoughts in Aging and Ageism: Can
You Have One Without the Other?
and send me suggestions
about what else you would like to see in On My Mind.